RBNE GET TOGETHER!

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RbNE October 2010 »

RBNE GET TOGETHER!

September 18, 2010 by Liza

If we have enough people RSVP…

The next Retinoblastoma New England get together will be on Monday, October 11th from 11am-2pm at Stonehill College, Easton, MA. Easton is approximately 30 minutes south of Boston, 2 hours from Hartford and New Haven, CT, and 4 hours from New York City.

There are reasonably priced hotels just a few miles from campus. If you are traveling far, we suggest you stay at one of the area hotels on Sunday night.

Activities include games, arts and crafts, and lots of food! We ask that each family brings either a dessert, side dish, or drink to the event.

Please comment or RSVP by emailing Liza@rbne.org.

Thank you!

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This work by Liza Talusan is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.
Pictures of Children

Please note that this site does contain actual pictures of our (beautiful) children with retinoblastoma. Some of the pictures may be detailed of their stitches, surgeries, etc. We ask that you DO NOT reprint pictures of our children without our explicit permission. If you ask, we'd be happy to participate in any way. But, please, they are little kids, and we do want to protect their privacy while also allowing for useful information. Thanks, their moms and dads
Disclaimer

This is not a medical diagnostic site for retinoblastoma. Rather, it is a resource of personal stories and experiences of families who have a child(ren) with retinoblastoma. Each retinoblastoma story is unique to that family. Rarely are two diagnosis stories the same. So, PLEASE, consult a doctor if for medical advice about retinoblastoma and/or its treatment.
About Us

Retinoblastoma of New England is a site created by families in the New England area who have a child or children with retinoblastoma. Because Rb is such a rare cancer, most of our contact with other parents are in an online community. We hope to gather the New England families at least once a year for our children to meet and get to know others with retinoblastoma. All parents who contribute to this site are entirely volunteering. No one on this site is paid to support families. If we have a family in your region, please let us know if you'd like a phone call from an Rb parent.
Contact

For questions or support, please leave a comment and an RbNE parent will get back to you. Please note that no medical advice will be given. Rather, we are here for emotional support and encouragement.
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Retinoblastoma New England

An online resource for families with retinoblastoma