Please note that this site does contain actual pictures of our (beautiful) children with retinoblastoma. Some of the pictures may be detailed of their stitches, surgeries, etc.
We ask that you DO NOT reprint pictures of our children without our explicit permission. If you ask, we'd be happy to participate in any way. But, please, they are little kids, and we do want to protect their privacy while also allowing for useful information.
Thanks,
their moms and dads
Disclaimer
This is not a medical diagnostic site for retinoblastoma. Rather, it is a resource of personal stories and experiences of families who have a child(ren) with retinoblastoma.
Each retinoblastoma story is unique to that family. Rarely are two diagnosis stories the same. So, PLEASE, consult a doctor if for medical advice about retinoblastoma and/or its treatment.
About Us
Retinoblastoma of New England is a site created by families in the New England area who have a child or children with retinoblastoma. Because Rb is such a rare cancer, most of our contact with other parents are in an online community.
We hope to gather the New England families at least once a year for our children to meet and get to know others with retinoblastoma.
All parents who contribute to this site are entirely volunteering. No one on this site is paid to support families.
If we have a family in your region, please let us know if you'd like a phone call from an Rb parent.
Contact
For questions or support, please leave a comment and an RbNE parent will get back to you.
Please note that no medical advice will be given. Rather, we are here for emotional support and encouragement.
