Events

With Retinoblastoma New England, we try our best to get together at least 1x a year. Not an easy task when people are fitting in treatment, post-diagnosis check ups, and dealing with the daily life chores! But, we realize how important it is for our children to get together, for our parents and caretakers to have some fun, and for siblings to get some special attention!

We work with former Camp Sunshine volunteers and college organizations to help with events. If you think your organization would like to help sponsor an RbNE get together, please contact Liza at liza(at)rbne(dot)org

Past Get Together Locations

2009: Boston Sports Club in Wellesley (thanks to Marissa Ferber)

2009: The Nasser home (CT)

2008: Lake Compounce (CT)

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This work by Liza Talusan is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.
Pictures of Children

Please note that this site does contain actual pictures of our (beautiful) children with retinoblastoma. Some of the pictures may be detailed of their stitches, surgeries, etc. We ask that you DO NOT reprint pictures of our children without our explicit permission. If you ask, we'd be happy to participate in any way. But, please, they are little kids, and we do want to protect their privacy while also allowing for useful information. Thanks, their moms and dads
Disclaimer

This is not a medical diagnostic site for retinoblastoma. Rather, it is a resource of personal stories and experiences of families who have a child(ren) with retinoblastoma. Each retinoblastoma story is unique to that family. Rarely are two diagnosis stories the same. So, PLEASE, consult a doctor if for medical advice about retinoblastoma and/or its treatment.
About Us

Retinoblastoma of New England is a site created by families in the New England area who have a child or children with retinoblastoma. Because Rb is such a rare cancer, most of our contact with other parents are in an online community. We hope to gather the New England families at least once a year for our children to meet and get to know others with retinoblastoma. All parents who contribute to this site are entirely volunteering. No one on this site is paid to support families. If we have a family in your region, please let us know if you'd like a phone call from an Rb parent.
Contact

For questions or support, please leave a comment and an RbNE parent will get back to you. Please note that no medical advice will be given. Rather, we are here for emotional support and encouragement.
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Retinoblastoma New England

An online resource for families with retinoblastoma

Events

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Pictures of Children

Disclaimer

About Us

Contact

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