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Retinoblastoma New England

An online resource for families with retinoblastoma

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Pictures

Please read our picture policy prior to copying and using photos of our children. We are happy to give you permission — we just want to know where these photos are being used. These photos have been helpful for others to detect Rb in their children, and we’d hate to have to take them down due to misuse by others. Thank you!

A prosthesis isn't round - it's more like a Pringles potato chip

A prosthesis isn't round - it's more like a Pringles potato chip

photo of Henry with no leukoria

photo of Henry with no leukoria

same photo shoot of Henry, same day, angle shows existing leukoria

same photo shoot of Henry, same day, angle shows existing leukoria

Joli's leukoria photo taken 2 months prior to diagnosis

Joli's leukoria photo taken 2 months prior to diagnosis

Age 2 1/2 leukoria photo

Age 2 1/2 leukoria photoMost think a prosthesis is round. It's shaped more like a potato chip, though!

senarb

Joli just after her stitches were removed - 3 days after surgery

Joli just after her stitches were removed - 3 days after surgery

Joli at a doctors appointment with removed prosthesis
Joli at a doctors appointment with removed prosthesis

Henry - 1 month before diagnosis

Henry - 1 month before diagnosis

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  • Creative Commons License
    This work by Liza Talusan is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.
  • Pictures of Children

    Please note that this site does contain actual pictures of our (beautiful) children with retinoblastoma. Some of the pictures may be detailed of their stitches, surgeries, etc. We ask that you DO NOT reprint pictures of our children without our explicit permission. If you ask, we'd be happy to participate in any way. But, please, they are little kids, and we do want to protect their privacy while also allowing for useful information. Thanks, their moms and dads
  • Disclaimer

    This is not a medical diagnostic site for retinoblastoma. Rather, it is a resource of personal stories and experiences of families who have a child(ren) with retinoblastoma. Each retinoblastoma story is unique to that family. Rarely are two diagnosis stories the same. So, PLEASE, consult a doctor if for medical advice about retinoblastoma and/or its treatment.
  • About Us

    Retinoblastoma of New England is a site created by families in the New England area who have a child or children with retinoblastoma. Because Rb is such a rare cancer, most of our contact with other parents are in an online community. We hope to gather the New England families at least once a year for our children to meet and get to know others with retinoblastoma. All parents who contribute to this site are entirely volunteering. No one on this site is paid to support families. If we have a family in your region, please let us know if you'd like a phone call from an Rb parent.
  • Contact

    For questions or support, please leave a comment and an RbNE parent will get back to you. Please note that no medical advice will be given. Rather, we are here for emotional support and encouragement.
  • Archives

    • May 2012
    • December 2010
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    • October 2009
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    • August 2009
    • July 2009
    • June 2009
    • May 2009
    • March 2009
    • February 2009
    • January 2009
    • December 2008
    • September 2008
    • August 2008

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