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This is a beautiful coloring book designed for siblings of children with Rb. It’s also an awesome book written in very clear, and yet, age appropriate language. Special thanks to Grace Talusan (with help from Liza), Pam Bergsma (Joey Bergsma’s grandma), and Rob Harrell for contributing their talents for this important book.

"Joey's Special Eye" author, Grace Talusan and Joli

"Joey's Special Eye" author, Grace Talusan and Joli

I recently wrote to the Eye Care Foundation who has generously been funding the publishing of the coloring book. They are getting ready to order more! I’ve put in for an order to be shipped to me, too, so we can make them available in the New England area at our future get-togethers. I’m also hoping to bring them to Mass Eye and Ear when we go for our next appointment as well as bring more to Camp Sunshine next summer.

Leave a comment if you have a copy of the book and tell us what you think about it! (although, we already know how wonderful it is!! 🙂

As a special ‘shout out’ to Grace Talusan – she has been a wonderfully public writer about her experiences as the Aunt of an Rb kid. Grace has published stories in a book called “Silence Kills” as well as has been published in Tufts University Alumni Magazine with her moving story “Blinded.” For more information about Grace Talusan, or to read her stories about Rb, please visit her site. Thanks!

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