Posts Tagged ‘leukoria’

Thanks to all the people who turned out for our October 2010 Retinoblastoma New England get together. It was a beautiful day for apple picking, going through the corn maze, and a trip to the country store. It’s always such a treat to see old friends and new friends, and to see the kids have such a wonderful time together!


I always believe that encounters happen for a reason. I found myself a few dollars short of being able to go into the Corn Maze with the family, and was a little disappointed. I happened to strike up a conversation with a woman who was waiting for her own kids to finish the corn maze, and it turns out she is a photographer specializing in photographing infants and toddlers! We had a really extensive conversation about retinoblastoma, leukoria, and the chances of actually detecting it “by accident” via a photograph. Even this woman had said, “We were meant to meet today.”


I hope that she is one more angel in this fight for early detection of retinoblastoma, especially given what she does for a living.


As always, if you would like to join us for our next RbNE get together, please leave a comment here and one of our RbNE parents will get back to you!






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0000057While the holiday season is, yes, considered the most wonderful time of the year, it’s also a time when children tend to be the most frequently photographed. And, as you may be discovering, many parents first noticed signs of retinoblastoma in photos taken of their child.

While seeing leukoria — better known as the “cat’s eye reflex” — is not definitive of the cancer, it’s a good thing to get checked out if you see it in a photo.picture-1

And, unfortunately, leukoria doesn’t always show up. If you go to our “PICTURES” link, you’ll see a great set of photos of Henry. In one photo, there is no leukoria. In another photo, taken the same day (hence the cute striped outfit!), the leukoria is as clear as day!

Detecting retinoblastoma early is the best way to save a child’s vision and life.

Many of us always say, “We wish we had known what to look for in these pictures.” That’s why we’re passing on the information.

Happy holidays to you and your families!

the Families of Retinoblastoma New England

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