Posts Tagged ‘retinoblastoma new england’

Thanks to all the people who turned out for our October 2010 Retinoblastoma New England get together. It was a beautiful day for apple picking, going through the corn maze, and a trip to the country store. It’s always such a treat to see old friends and new friends, and to see the kids have such a wonderful time together!


I always believe that encounters happen for a reason. I found myself a few dollars short of being able to go into the Corn Maze with the family, and was a little disappointed. I happened to strike up a conversation with a woman who was waiting for her own kids to finish the corn maze, and it turns out she is a photographer specializing in photographing infants and toddlers! We had a really extensive conversation about retinoblastoma, leukoria, and the chances of actually detecting it “by accident” via a photograph. Even this woman had said, “We were meant to meet today.”


I hope that she is one more angel in this fight for early detection of retinoblastoma, especially given what she does for a living.


As always, if you would like to join us for our next RbNE get together, please leave a comment here and one of our RbNE parents will get back to you!







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The 2nd Annual Retinoblastoma New England Get Together will be held (sunny, only!) on Sunday, August 2, 2009 at Lighthouse Park in New Haven, CT, from 11am-3pm. Please RSVP by commenting below. There is a $10 fee to park. It’s a pot-luck event, so please bring food for your family and “enough to share”. We will also be providing burgers and hot dogs (which is why we need an accurate count).

This is open only to families with children who have retinoblastoma. We hope to connect with adult survivors some day, soon!

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